I don’t know…

filtered-flowersI was walking through the field in front of the park I usually visit and I realized I absolutely did not want to be there. I wanted to be safe at home, curled up in my swing chair right now. Short of a teleportation device, that wasn’t happening. I managed to keep on walking.

Tears prickle my eyes for no reason multiple times a day and I keep hoping I won’t start sobbing, which would be embarrassing if I was out, and often causes a headache.

I don’t want to die. I don’t want to kill myself. And yet I have a completely detailed suicide plan. And Colin’s away and I got a sudden idea that I could implement it before he gets home. I won’t.

I ate a handful of crackers for lunch today and nothing at all yesterday because I’m not hungry. To be fair, I had packed an apple for lunch yesterday but there was an elderly man rummaging through the garbage and I figured he could use it more than me.

And I’m so very tired. All. The. Time. I wake up from a nap and feel like I should be sleeping again.

So much of my future is up in the air. I have a floor plan that likely looks like my unit but I have no idea if it’s accurate or not. I have a move in date but what if my building wants me out on the 31st? I’ve found several apartments for Colin and he’s turned them all down. I have no idea how much a moving van costs and am too scared to find out.

Will I make friends there? Will they be the sort of friend who hang out with you and do stuff together? Will they accept me for me? Autistic, asexual, panromantic, vegan, atheist. I don’t want to hear “I like you but…”

I have a psychiatrist appointment on Friday and I have a sinking feeling my answer to “And how’s Kathleen been?” will be “I don’t know”. But I really don’t know. And I’m going to take out the garbage and wash some dishes because leaving them as is will not help my mood. And hopefully my doctor will have a better idea to deal with this than I do.

glitter-in-my-hair

Me with glitter gel in my hair. Because depression’s on the inside, not on the outside

Advertisements

Saying goodbye to the old me…

It was Easter dinner last night and I had the menu all planned out. The previously frozen tofu was thawed and marinating in pickle brine. All I needed to do was peel and chop potatoes for fries then make the sauce for the broccoli before cutting the veggie into bite sized pieces. Oh and get the fries and broccoli into the oven to bake and dredge the tofu in a garlic powder and flour mixture and fry the tofu…

You get the picture. I’d hoped to make brownies too but I was struggling even with the thought of prepping the tofu. The veggies were overwhelming. So I ended up slicing up a tomato and an orange instead of prepping veggies. That way I wouldn’t end up curled up in the fetal position on the kitchen floor. Been there… done that… don’t want to do it again.

food prepI miss me. I miss the woman who could happily spend the day prepping meals then go on to read or write for a couple of hours. This picture’s from Facebook where I captioned it:

I spent all day cooking! I made apple sauce (apple, cherry, and nectarine sauce to be precise), chocolate pudding, fudgesicles, pizza dough, two different soups (lentil and broccoli-cauliflower), four loaves of banana bread, chocolate covered cherries, spaghetti sauce, almond cheese, and cashew cheese. Now it’s time for me to have a bubble bath, read a book, and relax before bed 

I struggle so much. I had to listen to two songs already just so I could be relaxed enough to write and I’m contemplating watching a third one. So many things I could handle with ease a couple of years ago, I can’t handle now. I get overwhelmed with shopping and will have to apologize to Colin because I just can’t handle one more store and the bus ride home too.

I used to curl up to read and finish (or almost finish) a novel. Now I’m lucky to get through a chapter. And I’m finding sleep getting harder and harder. My heart pounds… I feel short of breath. You’d think I was in a horror movie instead of my own safe bed. The past two days have found me listening to music in my swing chair in the wee hours of the morning, too anxious to sleep. It helps but it means I’m losing about two hours of sleep a night and I’m already needing an early afternoon nap so I can make it to evening.

I have brain fog. So much brain fog. People tell me things and I forget almost immediately, no matter how hard I try to remember them. I forget what I was saying as I’m speaking. I even forget what I’m thinking. I check my calendar multiple times a day, just in case I’m missing something. Sometimes I am and, luckily, I’ve found it before I was late. I signed up for free massages at Carea and completely and utterly forgot about them. Like I had no idea I’d even signed up, in writing, for one session let alone two. It was a pleasant surprise but still disconcerting. I am so thankful for reminder calls and texts.

The old me was lively and outgoing. She cheered people up and customers used to comment that her smile and friendly wave brightened their day. The old me carried around a notebook and wrote novel excerpts on the bus and quickly typed them out at home. The old me could hold a conversation that wasn’t online.

I’ve been autistic my whole life but the depression and anxiety ripped off my masks and I haven’t been able to find them again. I rock and sway regularly, listen to the same songs over and over (and over). Bounce in my swing chair to settle down. I have meltdowns when things aren’t going the way I thought and the world’s suddenly strange and different. Even though it really isn’t, it’s just my perception.

It’s weird to be mourning myself when I’m still here. But, in a way I’m not, there are so many differences between the old me and the new me, it’s like I’m a whole new person. I guess all I can really do is get to learn who the new me is and try to like her.

hair-band-1

 

Depression resurfaces…

I woke up to a room filled with sunshine and a sleepy cat purring by my side. My favourite breakfast food, hot chocolate and an english muffin, were waiting for me to prepare them and I bought myself a pomegranate as a special treat.

Soon the cats started pleading for their wet cat food then, as I rolled out of bed, a thought came unbidden.

“Oh no, not this again!”

The weight of all those hours and minutes ahead pressed down hard. It was overwhelming enough to take my breath away. Meanwhile there’s nothing stressful or even annoying about today. It was my body’s automatic reaction to simply being alive.

I have so much to live for. My adult children, a happy, adorable grandson, my parents, my cats. I’ve got a girlfriend who’s nice and doesn’t live too far away… who I’m seeing next week. Friends I see every week and more friends I chat with on messenger every day. I have an apartment I love and activities I truly enjoy. I have an amazing trip in a month and a half, where I’ll be surrounded by family. It’s a good life.

This depression didn’t spring out of nowhere. I’ve been struggling for several weeks to keep up with the dishes, wash my clothes, and make healthy meals. I have to start cooking by 4pm, otherwise I simply won’t have the energy to cook. I’m exhausted all day and need a nap in order to function… then wake up fully after using the toilet at night and need to settle myself all over again. I can’t understand how, at 2pm, I can sleep with my lights on and my comforter crumpled up under my right hip while at 2am, I can’t sleep because there’s a wrinkle near my big toe.

Luckily, this time, I haven’t reached the point of suicidal ideation. The cynical part of me whispers “yet”. I really don’t want to go to the hospital. It’s not bad, just boring as hell, which is okay for the first couple of days but gets more frustrating as time goes on. I can walk around the hallway and get my 10,000 steps (which I did last time), colour pages in the cafeteria, and chat with the other people. But there’s a lot of time and a limited number of activities to fill it with. I’d rather be home with my swing chair to calm me down, friends to distract me, cats to soothe me, and family to love me. Plus the freedom to walk in nature instead of around a sterile hall.

This post took me way longer to write than I expected. I started at breakfast time and have just finished lunch. And I keep on rocking in my chair and trying to breathe normally. Now I’m going to take a nap to calm me down and settle myself and hopefully the rest of the day will be better.

20190101_112037-01

Me at Cedar Valley Park

October musings…

Yesterday was weird… just weird enough to keep me off kilter. First came the cancellation of my Nordic Pole walking class, five minutes before I had to leave. Then I got a call during the walk to my Social Recreation group from my psychiatrist’s secretary. The doctor was going to be on-call the day of my next appointment, could I switch to having an appointment at 4pm that day? Sure, that was fine.

The group went well then I got to the psychiatrist’s office and he asked me if I’d done the blood work for my lithium levels. I hadn’t because my lithium and clonazepam stopped coming last week, the day before I was going in for the blood work. I’d called the drug store and they told me they’d been faxing my prescription to the office and hadn’t got a reply. The psychiatrist’s receptionist said nothing had arrived and to get them to send it again. The doctor was furious. He checked his faxes every single day, several times a day, and nothing had come in for me.

That was when Colin called to say my IUD had arrived but my blister pack of meds hadn’t. I was now completely out of medication with no warning. The psychiatrist immediately called the drug store who, as far as I could tell, didn’t have much to say. He then wrote me a prescription with 30 refills, which he said should last me a while.

I got home and checked the mail. Colin’s disability pay stub arrived but mine hadn’t. Of course my mind went to the worst case scenario. What if I’d been kicked off disability with no warning whatsoever? Never mind that I’d been assured by my case manager that never happens. But what if it did? It was too late to call the office, I just had to wait until morning and see if the money got deposited into my account.

Of  course we had to drop off the prescriptions at the drug store, which is when I was informed that I hadn’t run out of the rest of my pills, they were merely on hold while I was in the hospital. Umm… what? There was a bit of confusion but they finally understood that I hadn’t been in the hospital at all and the hold got removed from my file. Thankfully the pharmacist was willing to make a new blister pack for me although it would take two hours. We wandered around stores for as long as we could and had just got home when I got the call to get my blister pack. Luckily that went smoothly and I was soon back home and ready for bed.

I woke up this morning and my disability hadn’t been cancelled (phew). I chatted with Kait for a while, got Colin up, then Colin and I headed out for a big shopping trip. We were aiming for over $200 in groceries so Colin could get a gift pack of Knorr products. We got $300 of groceries instead, which was super fun for Colin to pull home (not). He was thrilled though because he earned 6,000 PC points ($6) toward free groceries.

Colin walking the wagon home

It might not look like much but there’s a huge bag of kitty litter, a 48 pack of canned cat food, and a big bag of cat food. Plus all our food in various places including in two baskets.

I got the groceries stuffed away then went back out for our bus passes. Thankfully a friend told me they were still accepting October’s disability stubs so I was able to get mine too. Darn mail strike!

Two young men, college students, got on the bus home right after me and sat across from me. They didn’t go far and, as they left, I noticed one of them had lost his bus pass/student card. The driver stopped when I asked and, I asked if he’d wait for me while I gave the young man his pass back. The driver informed me that, no, he wouldn’t wait. He was on a schedule. Which meant I’d have to wait another half hour for the next bus if I got off. So I settled for leaning out the door and yelling at the students while waving the pass. They ran over to get it while the driver grumbled that he guessed he had to wait after all. Yeah, and I guess he’d never had to retrieve something from the bus depot on the other side of town, especially something as necessary as a bus pass. The student was grateful at least and I was glad I noticed it in time for him to get it back.

And now it’s time to snuggle up in bed. Tomorrow’s a new day and a new month and another fresh start.

born to be awesome

Foggy with a 100% chance of confusion…

I left home this morning with a big bag of cleaning supplies, a broom, a mop, and the sound of Colin yelling, “Fuck! I’m going to be late for school!”

I was heading to Kait’s new apartment to clean it before they moved in. I find that when you move into a high rise, you can pretty much expect a clean place. Anything smaller and you just have to hope. This was a hope situation.

I walked in the front door and immediately had a panic attack, made more annoying by my thoughts of, ‘You’re supposed to be cleaning! You don’t have time for this!’ Luckily panic attacks, like kidney stones, aren’t forever and I eventually started to clean.

It didn’t take me long to realize that this was either a midnight move or one done by the laziest people ever. I’m betting on the latter. The fridge was still full of food, most of which was expired. Their dishtowel was still waiting to dry the cup in their dish rack. And the shampoo and conditioner were still in the bathtub, partially hidden by the shower curtain they’d left behind.

I took out four big bags of garbage and scrubbed everything imaginable and then Kait called. Her internet provider was coming over now, three hours early, and needed an adult there. So I agreed to stay.

Just over a half hour later, it was my turn to panic. Someone still needed to be there for internet guy but I had my emergency psychiatrist appointment to discuss the Mirtazapine along with my appointment with the Canadian Mental Health Association. Kait agreed to come back right then but they were 20 minutes away and the bus to get me to my appointment on time was in 10 minutes. But what could I do? I was still needed there.

And then it fell into chaos. My bus, which would take my right to my appointment didn’t show up. The one that arrived turned east about five blocks too early instead. Then I got to the downtown stop at the same time as my appointment was due to start… with my bus due in five more minutes. It arrived and three strollers had to get organized. Then the driver had to wait for two elderly people, one of which was across the street. I am very pro waiting for seniors but my flabber was ghasted that it all happened then. There’s usually a stroller or a senior.

I got to the hospital and the elevator door closed right in front me. Then there was a line at the receptionist desk. Finally I was able to go sit down and hope I’d get in.

I’d already called everyone so it was known I’d be late. I had my mental health appointment in the waiting room then explained, sheepishly, to my doctor that I’d been having quite severe suicidal ideation at the beginning of the week but they all stopped pretty much yesterday and I’m now back to my normal. My normal being a lot of anxiety and getting overwhelmed easily. But it’s a lot better than it was. He agreed that it was a good reason to make an emergency appointment and I’m keeping my regular appointment this month too.

crummy vegan jokeI lost two Facebook friends yesterday, neither of which interacted with me in any way, which makes their loss negligible. One posted a “joke” about vegans not being wanted at a barbecue and I replied. Instantly the OP responded wanting to know what I had against her. I’d disagreed with her political stance the day before and now didn’t like her joke. If I didn’t like her why was I her friend? Why was I trying to make her friends feel guilty for liking the joke? Some things there’s no coming back from. This ended up being one of them. Then a mutual friend took up the cause, defending her, and I ended up deleting them both.

One thing I find ironic is the “right” tends to claim the “left” is living in an echo chamber and only wants to hear from people who are like them. However, in my experience, the “right” tend to be the ones who get upset the easiest at the simplest of disagreements. They consider themselves strong and unflappable because they can laugh at controversial jokes, completely ignoring that the jokes in no way relate to them. I replied with a similar carnist joke in response to the one above and was immediately called a bully. Funny how that works.

Now Colin’s wandered into the bathroom for another three hour long bath. I swear this kid is going to turn into a prune! And he shared with me a time lapse video he made on his balcony this afternoon.

Don’t blink. Seriously. The video is maybe 4 seconds long. He’s thrilled with his new little camera though.

When bullying lingers…

20180515_154637.jpgIt was the day after Mother’s Day and Kait and I were in one of my absolute favourite stores, Icing. They sell just about anything sparkly and have glittered word art, a combo of two of my favourite things. All Kait needed was a wallet with a strap on it but she found two more things and there was a buy three, get three free deal going on that day. By the time we’d circled the small store at least twenty times, Kait was rapidly running out of possibilities and patience. She needed just one more thing and it had to be under $9, which, sadly, left out all the word art. Then I saw it, a sparkly pink butterfly clip, complete with tiny fake pearls. It was $6, which made it free with the deal and thus became my Mother’s Day present to go along with my glittery card.

I put it on right away, before Kait even paid for it, and double checked that it was positioned perfectly before I headed out the door. It was a matter of seconds before anxiety began gnawing at my stomach and clawing at my chest. Suddenly I expected every person we passed to laugh at me, to point out my butterfly clip, to taunt me. I flinched when people drew close because what if they hit or punched me? No one paid a single bit of attention to me but that didn’t stop the fear. It was overwhelming… all encompassing. I tried to reassure myself. I’d got the butterfly from Icing for pete’s sake, it wasn’t like I pulled it out of the toddler section of a department store. No one was going to think I was that weird.

I managed to make it down the hall and even got in a brief run through Dollarama, another favourite store, but I didn’t start feeling better until after we left the mall and were standing in the open by the bus stop. My chest and stomach slowly started to relax although I had to inform my daughter there was no way I could cook dinner that night. My spoons were done and gone. Simply getting home was going to be challenge enough.

Kathleen in 1981It wasn’t until later that I realized the origin of my fear. School. The crowds plowing both ways through the hallway felt like the halls at school and, as soon as my heart took me there, fear followed.

If I’d been bullied the same way as an adult instead of as a kid, it would have been considered abusive or harassment but I’d been a student in the 70’s and 80’s, part of the ere where kids were expected to sort “school yard squabbles” out on their own, so nothing was done.

As far as I could tell I was a perfectly normal kid. I loved to read, especially Trixie Belden books, and adored my pet cat Spotty. I rode my bike, climbed trees, and loved to write. My favourite colour was green and I’d travelled most of the way across Canada twice. My bullies didn’t know any of this. In fact they didn’t know anything about me at all. That didn’t stop them from calling me a freak, a retard, a homo. That didn’t stop them from tripping and pushing me in the hallways and chasing me down on their bikes.

I quickly learned that if I hid in the convenience store, the store owner wouldn’t kick me out and my bullies would get bored and wander away. That if you were hiding behind a car, you had to hide behind a wheel, in case they look under for feet, and move along with them, hoping they wouldn’t take a second peek under the car when you were at the back and they were at the front. I learned to check my assigned seat for spit before I sat down and wipe it up quickly before the rest of the class arrived. I learned that people, no matter how kind they seemed to others, could be absolutely vicious even when they were unprovoked.

It’s been 34 years since elementary school (28 since the end of high school). It’s been decades since I’ve been chased, punched, or spat at and still, feeling a bit different, feeling a bit like I’m standing out, is enough to bring me back to being 11 years old, being attacked for no reason other than I didn’t quite fit in.

Most days I don’t think about it but on the days when fear is triggered, when my heart pounds, and my breath tastes metallic in my mouth, I wonder about my attackers. Do they ever think about how they acted as children? Do they ever feel any guilt or do they brush it off as something everyone did? Do they flip though their grade school yearbook with their kids and think “there’s Kathleen the freak” or do they think “shit we treated her badly”. I’ll never know the answers to those questions. To be honest, I never want to see any of them again.

As for me, I’ll keep rocking my butterfly hair clip and glittery tops and I’ll make sure to keep my trips to the mall on weekday mornings instead of busy afternoons. I know I don’t fit in and most of the days I’m fine with that. On the days I’m not, I’ll try to assure that small, scared part of myself that it’ll be okay.

 

Taking life one little bit at a time…

20180509_150012.jpgThere was a time, before, when I didn’t need lists. Stuff needed to be done so I did stuff. It was that simple. Now I get overwhelmed so easily. I forget to do things or get halfway through and just stop because there’s too much to do. But I’ve found a way to help. I wouldn’t be writing this post except I know I’m not the only one in this situation. The solution I’ve found is to micromanage and make lists.

When I was in grade school and when Colin was as well, the teachers set up something called “chunking”. That’s taking a big task and breaking it into little tasks. Let’s take a shower for example, because I’m pretty sure that almost everyone with a mental illness struggles with this. Don’t write down “have shower” if you know you’re going to really struggle. Write down get undressed, put clothes in hamper, turn on shower, shampoo hair, rinse, condition hair, shave legs and pits (optional), wash body, rinse hair and body, turn off shower, dry off, get dressed. It’s a lot of stuff but it gives you a chance to work through every step so you’re not stuck just conditioning and forgetting to wash or missing shaving one leg.

As you can see from my list above, I’ve done some minor chunking. Laundry has three mentions because all three steps are separate and, as you can also see, the chore chart is almost done. All that’s left is dinner, which is still cooking as it’s only 3:30pm. I even got my 10 thousand steps in on the Oshawa Creek Trail and doesn’t that leave a sense of accomplishment.

20180509_105345.jpg

Everything’s so green! I didn’t even need a sweater today!!!

 

If I’d been left to my own devices, without a list today, I don’t think I’d have got nearly as much done. One thing chunking and writing a list does is help you maximize your time. For example, I had laundry to wash today. It takes an hour and 38 minutes but in reality I’m only spending 5 to 10 minutes down there total. So my lunch was eaten while the laundry was in the washer and I made the biscuits while my laundry was in the dryer. By the time it finished, I’d not only made the biscuits but washed the dishes and taste tested two biscuits (the second just to be sure of course). My two heart shaped biscuits are in the fridge, ready to go for tomorrow, and my favourite tea cup is tucked safely away in one of my favourite bags, also for tomorrow (we’re having tea and biscuits).

Making a list gives you some accountability. It’s easier to put something off until tomorrow when it’s not staring you in the face. Also, pro tip, you will not want to do that thing tomorrow either. It’s better to get it over with unless you’re totally out of spoons. No one wakes up with a smile on their face and says, “Yay! I can’t wait to scrub the toilet today!”

The other side of micromanaging is don’t add too many things to your list. Just because they’re in smaller chunks doesn’t magically give you more energy. Listen to your inner voice, or in my case, the scribble in my stomach, that says “whoa there, I’m going to be crying in a fetal position halfway through dealing with this list”. I don’t care what your Mom, your uncle, or your friend Sarah can do in a day. Unless they’re coming over and doing this for you, plan for your limits. I could throw scrubbing the bathroom onto my list today no problem. Would I have the energy to do it? Hell no.

spoons

For my fellow spoonies

So try taking your life in baby steps. It might seem overly simplistic when you first start but when you’ve got a day that requires a lot of spoons it can be a real lifesaver!

Kathleen in blue

Yay! My chores are done!!!