The moving Colin blues…

I always figured the hardest part of moving is the packing (and unpacking). Now I’ve found a new frustration. Colin.

I love Colin dearly but he’s turning simple apartment hunting into a nightmare. He has several agencies helping him, which is great. The first unit they showed him was supposed to be a room with meals included. It was in a long term care facility and he’d have two other roommates and not even a curtain to give him some privacy. There wasn’t room for any belongings either. We all agreed that was not a good fit.

My last attempt to help him was when I found a gorgeous one bedroom apartment for $675/m. It was a ground floor unit and included access to the backyard including the deck and the jacuzzi. Yeah… a jacuzzi.

Colin turned it down because it was a “basement apartment” then proceeded to explain that every apartment in a house was a basement apartment, no matter what floor it was on, because the landlord could just say he had a family member who needs the unit and he’d be out in two months. Which is theoretically correct but isn’t that common. Colin kept insisting it was and after he yelled for a decent amount of time I told him I was no longer helping.

John Howard Society found him a room yesterday and he immediately took a look. It was close to shopping and, at $600/m, definitely affordable. Colin just turned it down because now he wants to get a full time job and stay here. At first he talked about working construction but someone (other than me) must have talked to him because now he’s talking about Dollarama.

I want him to find a place so badly so that he has somewhere safe to rest his head once I’m in my own place, and so I don’t have to worry about him with no apartment while I’m moving. But I can’t force him to take a place, no matter how much I want to. He’s a person with strong opinions and is determined this is his best course of action.

The John Howard worker is still looking for a place for him. I just hope he takes the next place.

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The apartment I found

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Saying goodbye to the old me…

It was Easter dinner last night and I had the menu all planned out. The previously frozen tofu was thawed and marinating in pickle brine. All I needed to do was peel and chop potatoes for fries then make the sauce for the broccoli before cutting the veggie into bite sized pieces. Oh and get the fries and broccoli into the oven to bake and dredge the tofu in a garlic powder and flour mixture and fry the tofu…

You get the picture. I’d hoped to make brownies too but I was struggling even with the thought of prepping the tofu. The veggies were overwhelming. So I ended up slicing up a tomato and an orange instead of prepping veggies. That way I wouldn’t end up curled up in the fetal position on the kitchen floor. Been there… done that… don’t want to do it again.

food prepI miss me. I miss the woman who could happily spend the day prepping meals then go on to read or write for a couple of hours. This picture’s from Facebook where I captioned it:

I spent all day cooking! I made apple sauce (apple, cherry, and nectarine sauce to be precise), chocolate pudding, fudgesicles, pizza dough, two different soups (lentil and broccoli-cauliflower), four loaves of banana bread, chocolate covered cherries, spaghetti sauce, almond cheese, and cashew cheese. Now it’s time for me to have a bubble bath, read a book, and relax before bed 

I struggle so much. I had to listen to two songs already just so I could be relaxed enough to write and I’m contemplating watching a third one. So many things I could handle with ease a couple of years ago, I can’t handle now. I get overwhelmed with shopping and will have to apologize to Colin because I just can’t handle one more store and the bus ride home too.

I used to curl up to read and finish (or almost finish) a novel. Now I’m lucky to get through a chapter. And I’m finding sleep getting harder and harder. My heart pounds… I feel short of breath. You’d think I was in a horror movie instead of my own safe bed. The past two days have found me listening to music in my swing chair in the wee hours of the morning, too anxious to sleep. It helps but it means I’m losing about two hours of sleep a night and I’m already needing an early afternoon nap so I can make it to evening.

I have brain fog. So much brain fog. People tell me things and I forget almost immediately, no matter how hard I try to remember them. I forget what I was saying as I’m speaking. I even forget what I’m thinking. I check my calendar multiple times a day, just in case I’m missing something. Sometimes I am and, luckily, I’ve found it before I was late. I signed up for free massages at Carea and completely and utterly forgot about them. Like I had no idea I’d even signed up, in writing, for one session let alone two. It was a pleasant surprise but still disconcerting. I am so thankful for reminder calls and texts.

The old me was lively and outgoing. She cheered people up and customers used to comment that her smile and friendly wave brightened their day. The old me carried around a notebook and wrote novel excerpts on the bus and quickly typed them out at home. The old me could hold a conversation that wasn’t online.

I’ve been autistic my whole life but the depression and anxiety ripped off my masks and I haven’t been able to find them again. I rock and sway regularly, listen to the same songs over and over (and over). Bounce in my swing chair to settle down. I have meltdowns when things aren’t going the way I thought and the world’s suddenly strange and different. Even though it really isn’t, it’s just my perception.

It’s weird to be mourning myself when I’m still here. But, in a way I’m not, there are so many differences between the old me and the new me, it’s like I’m a whole new person. I guess all I can really do is get to learn who the new me is and try to like her.

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Life, death and music…

CN: frank discussion of suicide

So I sit here in my nightie. I didn’t have anywhere to go today so I stayed in it. It’s cosy at least.

I just got myself dinner, feeding the cats first because they’re important. I was going to make french fries and gravy but I couldn’t handle peeling and chopping for that long. Even thought it would only be about five minutes. So I toasted myself an english muffin and made a mug of hot chocolate. I make them so often I can do it on autopilot.

I washed the dishes yesterday before dinner and I presume the dish fairy arrived shortly after. All the dishes look like mine but there’s way more there than there should be for a day. The thought of washing them is overwhelming.

Depression is like wading through tar. It clings to you and pulls you down further and further. Every single step is the hardest and every conversation is a struggle. How am I doing? Fine is too much of a lie. I usually settle for “okay”. It’s enough to slide by without sounding like everything’s all right. Because it’s not.

So I browse on Facebook, looking at the message box and wishing someone would message me. I am always the first one to message, which makes me wonder if there’s something wrong with me. Everyone assures me there isn’t. Besides that, I have no idea what to say beyond hi.

I read an article in the Reader’s Digest a bit ago. The author had been suicidal and jumped off the Golden Gate Bridge. As soon as he let go, he knew it was a mistake. But what could he do at that point? Thankfully he survived. One out of four who managed that feat. Out of thousands who didn’t. And you know what? Every one of the survivors knew it was a mistake as they let go. I refuse to believe they were the only ones and it breaks my heart to know the thousands more were lost. There’s no second chance when you’re plummeting.

I also read a surprisingly graphic news story about a teenage boy who jumped from a four storey balcony. The surgeons discovered shattered bones and shredded organs. They had to stitch him back up and let him die. There was no way to save him. They couldn’t stitch together fragments. I’d wanted to donate my organs and gave no thought to what condition they’d be in after a fall. I figured I’d be just me, still intact only dead.

I’d planned on jumping off our seventh floor balcony (eight if you consider the slope to the basement). The only thing that stopped me was my fear that it wouldn’t be high enough. That I’d disable myself enough not to be able to try again. Thankfully my sister saw my rambling note on Facebook and drove me to the hospital and she and my mother took turns sitting with me while waiting for my turn with the psychiatrist.

Any time I start feeling suicidal in the least, I think of that first article and the four survivors. Some mistakes you can’t come back from and that’s one of them. Jeez, I waffle over which ice cream to buy at the grocery store. Deciding whether to die is so much more dire and the consequences spread devastation over such a wide range. That’s not a decision I should be making. Someday I will die but it won’t be today.

So here I sit weighted down by depression. Soon I’ll move my bones and wander over to my swing chair, where I’ll proceed to rock and listen to music videos.

And hopefully this bout of depression won’t last too long.

List of world wide suicide prevention lines

Depression resurfaces…

I woke up to a room filled with sunshine and a sleepy cat purring by my side. My favourite breakfast food, hot chocolate and an english muffin, were waiting for me to prepare them and I bought myself a pomegranate as a special treat.

Soon the cats started pleading for their wet cat food then, as I rolled out of bed, a thought came unbidden.

“Oh no, not this again!”

The weight of all those hours and minutes ahead pressed down hard. It was overwhelming enough to take my breath away. Meanwhile there’s nothing stressful or even annoying about today. It was my body’s automatic reaction to simply being alive.

I have so much to live for. My adult children, a happy, adorable grandson, my parents, my cats. I’ve got a girlfriend who’s nice and doesn’t live too far away… who I’m seeing next week. Friends I see every week and more friends I chat with on messenger every day. I have an apartment I love and activities I truly enjoy. I have an amazing trip in a month and a half, where I’ll be surrounded by family. It’s a good life.

This depression didn’t spring out of nowhere. I’ve been struggling for several weeks to keep up with the dishes, wash my clothes, and make healthy meals. I have to start cooking by 4pm, otherwise I simply won’t have the energy to cook. I’m exhausted all day and need a nap in order to function… then wake up fully after using the toilet at night and need to settle myself all over again. I can’t understand how, at 2pm, I can sleep with my lights on and my comforter crumpled up under my right hip while at 2am, I can’t sleep because there’s a wrinkle near my big toe.

Luckily, this time, I haven’t reached the point of suicidal ideation. The cynical part of me whispers “yet”. I really don’t want to go to the hospital. It’s not bad, just boring as hell, which is okay for the first couple of days but gets more frustrating as time goes on. I can walk around the hallway and get my 10,000 steps (which I did last time), colour pages in the cafeteria, and chat with the other people. But there’s a lot of time and a limited number of activities to fill it with. I’d rather be home with my swing chair to calm me down, friends to distract me, cats to soothe me, and family to love me. Plus the freedom to walk in nature instead of around a sterile hall.

This post took me way longer to write than I expected. I started at breakfast time and have just finished lunch. And I keep on rocking in my chair and trying to breathe normally. Now I’m going to take a nap to calm me down and settle myself and hopefully the rest of the day will be better.

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Me at Cedar Valley Park

Why do I keep going?

You keep going because puppies and kittens are a thing and tomorrow might have the best sunset you’ve ever seen. You keep going because of belly laughs and your favourite ice cream. For the glimpse of a cardinal. For music so pure and lovely that it sends shivers up your spine.

You keep going for the sound of a baby’s laughter and a new book from your favourite author. You keep going for a bubble bath that smells heavenly and for the crisp crunch of snow beneath your feet. You keep going for summer swimming and sunlight through new green leaves. You keep going for a glimpse of that big, fat orange moon in the fall, the one so impossibly orange you can’t believe it’s not photoshopped even though you’re looking at it in the sky right now.

You keep going because of your favourite meal and how you can’t imagine not eating it ever again. You keep going because your favourite show has been renewed and it’s only four more months until the new episodes. You keep going because that couldn’t be the last mug of coffee you’ll ever savour.

You keep going because life isn’t an exciting movie with cliff hangers and a fast paced plot. It’s a series of small things all strung together by you. And you keep going because maybe one of those small things is big enough to convince you not to cut the string.

You keep going because the alternate leaves you with nothing.

Trans Lifeline (Canada): 877-330-6366 (US): 877-565-8860
Crisis Text Line (US): text “go” to 741741
Crisis Text Line (Canada): text “talk” for English and “texto” for French 686868

Where are the stars?

picture 2First came Kate Spade. I knew about her vaguely  because she brought out a purse shaped piggy bank titled “Kate saved” and I’d debated on buying it for Kait for her birthday. My Mom pointed out it was a play on words with the designer’s name, which I’d never heard before. I didn’t hear about her again until I found out she’d strangled herself to death with her red scarf.

Then came Anthony Bourdain. I don’t even know anything about him, just that he was 61 years old and had been fighting depression and substance abuse.

And then came the Facebook posts saying that he didn’t die too soon. He’d struggled for years and had lived a lifetime. That he’d had 30 more years than someone who’d died at thirty-one and the poster would have given anything for those thirty extra years.

I’m a hell of a lot closer to 61 than I am 30 and I can tell you right now that it isn’t enough. I want the chance to see my grandchild grow up. I want to see him finish high school, to fall in love. He’d only be 13 if I died then.

And I sit here in the sunshine and wonder where’s the light. It’s supposedly darkest before the dawn but I’m staring into the east and there’s no sun rising there.

They say that in the darkness there’s stars but the depths are inky black and no pinpricks of light are shining back at me.

I told my psychiatrist that those two were rich, with all the amenities that affords. The best therapists. The best counselling. I’m, well, not rich. I worry about falling through the cracks to land seven stories below. I guess technically eight because there’s a slope under my apartment.

My psychiatrist is worried about me.

When is going to the hospital the best choice to make and when is it running away from my problems? I’m already avoiding both balconies. My mind spools like an old film projector, showing reel after reel of me jumping. But, at the same time, I need to get the letters from our office for Revenue Canada. I need to deliver my new prescription to the pharmacy. And my cats would miss me.

And I look to the sky and hope, in vain, to see the stars.

hardest thing

2016… the year that won’t die…

2016I started out thinking that 2016 was going to be my year. My best friend of five years had asked me to start dating him and, by February, we were already hammering out rough plans for a simple, yet simply perfect, wedding… complete with a hot air balloon ride and trip to the Doctor Who museum. I bought plane tickets to see him in October and had a countdown going on my phone for how many days I had left. He was counting down too.

At first the goal was for him to move in with me but then we switched to me moving there. I didn’t realize it at the time but a lot of the reason for my decision was deep depression. I simply didn’t feel like anyone other than Lenny wanted me so what point was there in staying in Canada?

I knew I was struggling. I had Ativan from my family doctor for panic attacks and a low dose of Effexor for depression and I still had to hold myself back with all my strength some days to keep from running, screaming, out the front door of work. I couldn’t do that. I needed to be employed. I needed to stay employable so that I could move. So I transferred stores to work at one a five minute walk from home. That cut out two hours of transit time a day but my anxiety and depression increased. I confessed to Lenny that I was suicidal and he broke up with me two days later. Then I wrote a long and rambling letter on Facebook which was worrying enough that my sister took me to the hospital.

Going to the hospital netted me with more medication and a psychiatrist but things weren’t perfect. There were gaps between the various forms of disability assistance and I had three months with no income (not sequentially). Lenny first backed out on having me stay over then he blocked me the morning after my first hospital stay. I’ve never heard from him again.

It wasn’t until the late fall that things started picking up but I was still suicidal and still struggling. And flipping the calendar to 2017 didn’t solve anything. I was back in the hospital in January and February. Then came income tax time and me, in my infinite wisdom, decided that maybe I wasn’t in the best mental condition to do my taxes, even though I do them every year. So I hired someone.

July rolled around and I got an unexpected windfall of $200 and change. It was nice but there had to be a reason why. And that reason was the person who did my taxes never included my rent so, when it came time to calculate the Trillium benefit, I got the bare minimum. So I worked with the Canadian Revenue Agency, sent in the information, and requested a lump sum payment in June 2018 instead of monthly payments.

Then Colin got audited for, you guessed it, 2016. They wanted proof of rent. We got a basic income tax statement showing out total rent and I wrote a letter on it saying he paid half while I paid the other half. Then his GST cheque arrived and I figured that was good enough. It wasn’t. He got another letter asking for proof that he’s on the lease AND proof he pays half the rent. Nothing’s ever that easy.

Trillium was supposed to be deposited yesterday. I checked at 7:30am when I woke up and nothing. But I’ve had deposits as late as 8am so I wasn’t too worried. At least until 8am arrived and my money didn’t. I had a group to attend so I called the CRA while I was walking to the bus, the whole bus ride, and walking to the group. Two wrong numbers and a number that lead to a message stating “All our operators are dealing with other clients and our queues are full. Please try again later.” Finally I got someone who wasn’t dealing with Trillium but used some of the same software. He discovered they didn’t have my letter so he transferred me to someone else who gave me a bunch of information that I wrote on a sheet of paper towel. I’d love to say that was it but I also had to sign up for their online site and that was another headache with another phone call.

So tomorrow I have to write a letter for our building’s office asking for a letter for both Colin and I and for him to be finally put on the lease. Then I need to hand deliver it first thing Monday morning and hope our letters are ready soon. Maybe then will 2016 finally be done and buried because I’m telling you, it is truly starting to stink!